This study investigates pregnancy outcomes in women with Pompe disease. This study includes women who are pregnant or have been pregnant and are already part of the Pompe Registry.The purpose of this study is to observe and collect data about pregnancy complications and infant growth in women with Pompe disease. …
This study investigates the use of electronic health records (EHR) to validate diagnostic codes for chlamydia infections. The purpose is to determine if the TriNetX database can be a reliable source for chlamydia-related research. The study aims to assess the accuracy of ICD-10-CM codes for identifying chlamydia cases and to …
This study investigates the experiences of individuals with stage 2 Type 1 diabetes in the United States. The study compares those who have received an infusion with an investigational medication and those who have not.Participants will provide information on their quality of life, diabetes-related anxiety, and how they manage their …
This study investigates the condition of atopic dermatitis in adolescents and adults who are starting or changing their systemic treatment. The purpose of this study is to better understand the needs and experiences of these patients.The study will focus on evaluating the safety and outcomes of different systemic treatments for …
This study investigates the long-term safety and effectiveness of therapies for non-neoplastic hematologic disorders. The purpose is to collect data from participants with various blood disorders, such as hemophilia, von Willebrand Disease, and congenital platelet disorders, over a period of at least 15 years. Participants will be grouped into specific …
This study investigates the effects of atopic dermatitis (AD) on pregnancy outcomes. This observational study will compare the incidence of adverse pregnancy outcomes, such as miscarriage or stillbirth, and the prevalence of adverse infant outcomes, like major congenital malformations or being small for gestational age, in women with AD who …
This study investigates the effects of an investigational medication on people with Stage 2 Type 1 Diabetes. The study focuses on understanding the long-term outcomes of the investigational medication when given as part of regular care. It will look at how the treatment affects the quality of life, including emotional …
This study investigates asthma in people receiving routine clinical care. It aims to describe the characteristics of participants with asthma, including their sociodemographic and clinical traits, treatments, and how asthma affects their lives.The study focuses on understanding the disease severity and health-related quality of life in asthma patients. It seeks …
This study investigates the effects of exposure to an investigational vaccine during pregnancy. The purpose is to assess maternal, obstetrical, pregnancy, neonatal, and infant outcomes among women who were vaccinated with the investigational vaccine during pregnancy or in the 30 days before their last menstrual period.Participants in this observational study …
This study investigates the safety of an investigational medication when used by women during pregnancy and lactation. The purpose is to collect data on the effects of the medication on pregnancy outcomes, maternal health, and the developing child. Outcomes in infants exposed to the medication will be assessed, including their …
